Life is good! Life is inspirational!

This blog has always been dedicated to raising awareness of heart conditions, but this week we are raising the focus of Parkinson’s. Parkinson’s is a progressive neurological condition which means that it causes problems in the brain and worsens over time. There is no cure!

My father had a Parkinsonism condition called progressive supernuclear palsy. It was a beast of a condition which robbed him of his ability to speak, walk and swallow yet even more cruel in the sense that he retained capacity and was aware of everything that he was being subjected to. He died in 2017, 10 years after diagnosis. This year marks the fifth anniversary of his death. Therefore both cardiac conditions and Parkinson’s are close to heart.

Dad! Circa 2011

As a result, I will be joining Parkinson’s UK in a sponsored “virtual arch to arc” alongside their chair of trustees, Gary Shaughnessy who will be completing a gruelling 83 mile run from London to Dover, a 21 mile row across the Channel and a 186 miles to Paris. Wow! Right?! Those completing the virtual arch to arc will together look to notch up the 300 miles of the triathlon at the same time with individuals contributing to the overall total in any way they can.

I have elected to attempt to cycle 50 miles (in the gym) as part of my mini challenge. However, as maybe ‘pathetic’ as that sounds in the light of the amazing efforts of others and in a world that pushes the bounds constantly in social media, for me it will be a major challenge. My fitness levels have crashed this year having struggled massively with my condition in recent months. Alongside the PoTS which I have written about in my bio, I suffer with atrial fibrillation, a surprisingly common condition whereby the heart ticks out of rhythm and at rates that can sometimes be eye wateringly high. It renders me fatigued and dizzy. However, for AF sufferers, there has been a lot of newsworthy attention on lifestyle modification in recent years encouraging people to maintain an exercise regime, very much the same as we encourage people with Parkinson’s to keep exercising. But when you have a chronic condition of any sort, it’s hard work and takes perseverance.

Dad and Me, 2015 (our last holiday in Cornwall)

Walking distance is out for me but using the recumbent bike in the gym should be possible. Therefore the 50 miles in the gym will be carried out in small bite size chunks over a time that allows me to safely complete the challenge. The main outcome though will hopefully be to raise funds for Parkinson’s UK who support patients, like my Dad, to live well with their condition through a dedicated information and support service as well as championing research in a quest to find a cure.

A cure can’t wait! It didn’t come in time for Dad but we are getting closer all the time. However, can you help?

If you would like to sponsor me, please go to https://events.parkinsons.org.uk/fundraisers/ginidellow?fbclid=IwAR0d_H1eun93iyZfe5cVPF0rp0VsF882myLwRjLGa61d43UNRMYF0P0cnPc

Every penny makes a difference.

Thank you

A Mother’s Love

One thing I have always been committed to is giving my children unconditional love. Loving them with all my heart absolutely without question through the good and bad times. I believe they each know that and I pray that they are uplifted by that because when that love is missing in a child’s life, or when love comes with conditions or is withheld or replaced with ostracism, or it’s benefaction is a consequence of a child fulfilling a parents request rather than being the bedrock of the relationship unconditionally, the fallout leaves an unfortunate legacy for a lifetime. For love is not a neatly packaged commodity that only comes out when everything goes well. True love weathers the storms and perseveres through thick and thin. It doesn’t barter. It doesn’t trick. It seeks truth and holds fast in sunshine and in rain.

The Orchards

You know when you get away and the creative juices flow? Well this weekend has been one of fresh air, beautiful scenery, opportunities to draw and an occasion to write about! Feeling very blessed.

https://www.facebook.com/the.orchards.ilam

The Hotel

I saw a sign at Sainsbury’s
Pointing to a new hotel
Abreast some stilts stuck in the ground
For somewhere safe to dwell

Where a million little windowpanes
In honey combed array
Said ‘welcome to our hotel
Please enjoy your stay.’

I thought I’ll do my shopping
Then book in there to rest
For a night of being spoilt
Would render me less stressed

So, with champagne in hand and chocolates
I headed to book in
Complete with my favourite book in tow
And can of rhubarb gin

But when I saw the front of house
I had a change of mind
For he was garbed in bright yellow
With black stripes around him lined!

And with a sting in tail, he said
“Buzz off! Get Lost! Farewell!
For you cannot stay here human!
This is a bee hotel”

Opinions 😉

If we assimilate opinion
From sources of similarity
Then opinions will be influenced
By the views these sources see.
But if we broaden our horizons
Or acknowledge our own dearth,
Then new perspectives on our opinions
Will subsequently be unearthed
And as such these new opinions
Whether they shift or stay the same,
May then recognise the bias
That exists in what we claim.
For a forged opinion may come out of
What we know or think we know.
But these notions in all fairness
May be flawed or need to grow!
And thus whilst knowledge, by definition,
Maybe true, it may be wise
To recognise that opinion’s truth values
Come in more than just one size.

Thrive!

I saw a meme comparing development to popcorn and thought that resonates so it got ‘poemed’ (is that even a word? 🤣)

My practice has always put the person first working outside expectation and curriculum with person-centred care and support. In other words your agenda – your pace whatever age! I just wish that was the way right from early on.

Just Sit And Be …

Just sit and be

A Fable

A Fable
Four little starlings
Sat all in a row
Up high upon the aerial
Thinking where to go

Three tweeted all together
Hatching a plan of where to fly
Yet one would not play ball
And flew off alone into the sky

He flew towards the sun
Intent that he knew best
Proud that he was his own bird
Independent of the rest

He ignored the other three
Who tweeted ‘come back here’
But Derek (we’ll call him that)
Thought ‘I’ve got this, don’t you fear’

Soaring on the wind,
He puffed himself with glee
“I’m so much better than those others
So much greater than those three!”

His ego was astonishing
His arrogance complete
Yet sadly he would not listen
Why the other three did tweet

For the sun, as he perceived it
Was not the sun at all
But a ball of fluffy ginger cat
Who became Derek’s downfall!

And in an instant with a huge pounce
Up high into the blue
Poor Derek met his comeuppance
And became this cats new chew!

So the moral of this story
Is listen to the team
For their perspective maybe the ticket
That helps you reach your dream!

Bindweed 🐝

The battle of the bindweed
A creepy damned affair
As under fence and through crevice
The stuff is everywhere
A wrapping round the plant stems
A stranglehold that thwarts
Growth and health and thriving
As it chokes and kills in short!

And though troublesome in plenty
There’s one good thing it does
For its blooms produce a pollen
For moth larvae and bees that buzz
And so for gardener the bindweed battle
May be a constant fight
Yet a battle won on one front
May be a war lost in hindsight!

Memories of Yesterday

We spent today under the bright blue skies on Blackheath in London celebrating my boy’s birthday. So many memories too though of happy days from my own youth