Life is good! Life is inspirational!

Posts tagged ‘atrial fibrillation’

Virtual Arch to Arc for Parkinson’s UK

This blog has always been dedicated to raising awareness of heart conditions, but this week we are raising the focus of Parkinson’s. Parkinson’s is a progressive neurological condition which means that it causes problems in the brain and worsens over time. There is no cure!

My father had a Parkinsonism condition called progressive supernuclear palsy. It was a beast of a condition which robbed him of his ability to speak, walk and swallow yet even more cruel in the sense that he retained capacity and was aware of everything that he was being subjected to. He died in 2017, 10 years after diagnosis. This year marks the fifth anniversary of his death. Therefore both cardiac conditions and Parkinson’s are close to heart.

Dad! Circa 2011

As a result, I will be joining Parkinson’s UK in a sponsored “virtual arch to arc” alongside their chair of trustees, Gary Shaughnessy who will be completing a gruelling 83 mile run from London to Dover, a 21 mile row across the Channel and a 186 miles to Paris. Wow! Right?! Those completing the virtual arch to arc will together look to notch up the 300 miles of the triathlon at the same time with individuals contributing to the overall total in any way they can.

I have elected to attempt to cycle 50 miles (in the gym) as part of my mini challenge. However, as maybe ‘pathetic’ as that sounds in the light of the amazing efforts of others and in a world that pushes the bounds constantly in social media, for me it will be a major challenge. My fitness levels have crashed this year having struggled massively with my condition in recent months. Alongside the PoTS which I have written about in my bio, I suffer with atrial fibrillation, a surprisingly common condition whereby the heart ticks out of rhythm and at rates that can sometimes be eye wateringly high. It renders me fatigued and dizzy. However, for AF sufferers, there has been a lot of newsworthy attention on lifestyle modification in recent years encouraging people to maintain an exercise regime, very much the same as we encourage people with Parkinson’s to keep exercising. But when you have a chronic condition of any sort, it’s hard work and takes perseverance.

Dad and Me, 2015 (our last holiday in Cornwall)

Walking distance is out for me but using the recumbent bike in the gym should be possible. Therefore the 50 miles in the gym will be carried out in small bite size chunks over a time that allows me to safely complete the challenge. The main outcome though will hopefully be to raise funds for Parkinson’s UK who support patients, like my Dad, to live well with their condition through a dedicated information and support service as well as championing research in a quest to find a cure.

A cure can’t wait! It didn’t come in time for Dad but we are getting closer all the time. However, can you help?

If you would like to sponsor me, please go to https://events.parkinsons.org.uk/fundraisers/ginidellow?fbclid=IwAR0d_H1eun93iyZfe5cVPF0rp0VsF882myLwRjLGa61d43UNRMYF0P0cnPc

Every penny makes a difference.

Thank you

On The AF Highway

On the AF Highway
It’s a battle; it’s a pain
For though this vehicle’s moving quickly
It’s inconsistent all the same
For one minute it is speeding
Then the ABS kicks in
Before cruise control takes over
And another bout begins

And as such the fuel is guzzled
Using up all energy
Going up and down the gears
With lights flashing constantly
As the electrics get all fizzy
And the highway seems to spin
Hitting traffic jams and road blocks
In race you’ll never win

 

Arrhythmia

It beats but not in tempo
It pulses out of time
It taps all in a muddle
Less rhythm and less rhyme
Wiping the hours out daily
In a whirl of dizziness
Aware of butterflies in veins
Or struggling to catch breath
As heart beat and heart rhythm
Conducts all out of skew
For that’s the way arrhythmia
Can feel when it strikes you!

ARRHYTHMIA

The Heart Rhythms Charity

If you’re feeling symptomatic
If you’re young or if you’re old
Or if you’re feeling fine
Just do as you are told
And get to know your pulse
To feel a constant beat
Lest if it’s bounding out of time
Don’t say it is the heat

But go and get it looked at
Check in with your GP
To see what is occurring
Let them be referee
To see which beats are dandy
Or which have gone astray
So take your pulse and make a note
For good heart health today!

And then we’ll all be happy
Celebrating more lives saved
Ensuring better care for those
Whose pulses don’t behave
Increasing improved access
For those arrhythmically
With help and with support from the
Heart Rhythms Charity

This week has been Heart Rhythm Week celebrating Ten Years of Innovation and Advancements in Arrhythmia Patient Care. To mark this Ginz&Tonic have been posting poems everyday to encourage everyone to “know their pulse” . Your support over the week and beyond will make a difference in helping to protect the many millions of arrhythmia patients worldwide.  Together we can:

  • Work to save 100,000 lives from sudden cardiac arrest (SCA)
  • Improve outcomes for 1 million AF patients
  • Increase early detection and management for 2 million arrhythmia sufferers

Please click here to find out more 

Know Your Pulse

The Heart-Beat Blues

Woke up this very morning and was feeling rather blue
Woke up this very morning and was feeling rather blue
Cos my pulse was out of sync
And there ain’t much I can do

And

I got those heart beat blues with its rhythm out of touch
I got those heart beat blues with its rhythm out of touch
Cos it beats arrhythmically
I don’t like it very much

It makes me feel all woozy, all faint and mighty odd
It makes me feel all woozy, all faint and mighty odd
And these blues are so tiring
Riding over me roughshod

So

I curl up in ma corner and think the day is done
I curl up in ma corner and think the day is done
But Lord, there’s more to livin’
And I wanna have some fun

For

These blues ain’t gonna beat me – not spoil my life today
For these blues ain’t gonna beat me – not spoil my life today
I’m gonna pick myself up
Get checked out; be on ma way

This week is Heart Rhythm Week which celebrates Ten Years of Innovation and Advancements in Arrhythmia Patient Care. Your support will make a difference in helping to protect the many millions of arrhythmia patients worldwide.  Together we can:

  • Work to save 100,000 lives from sudden cardiac arrest (SCA)
  • Improve outcomes for 1 million AF patients
  • Increase early detection and management for 2 million arrhythmia sufferers

Please click here to find out more 

♥

♥ (Photo credit: staticjana)

You’ve Got The Beat

There are hearts wherever you might look
Just see them all about
But only one sort needs your time
And care to sort right out

The one inside your body, see
The one that pumps to squirt
The blood into your arteries
That stays awake alert

For every day and every night
It beats a constant stroke
To keep your body stocked up with
Clean blood. For real – no joke!

It works so hard and cannot rest
But you can help it still
With healthy food and exercise
To make yourself feel brill

And every now and then maybe
Just count the beats from it
To know your pulse rate and rhythm
As part of keeping fit!

This week is Heart Rhythm Week which celebrates Ten Years of Innovation and Advancements in Arrhythmia Patient Care. Your support will make a difference in helping to protect the many millions of arrhythmia patients worldwide.  Together we can:

  • Work to save 100,000 lives from sudden cardiac arrest (SCA)
  • Improve outcomes for 1 million AF patients
  • Increase early detection and management for 2 million arrhythmia sufferers

Please click here to find out more or for children click here

Heart

Heart (Photo credit: seyed mostafa zamani)

 

Pulse

They said “Go get the leccy man”
The one who checks the wires
The chap who tests the current and
Who sees what then transpires”

They said get him to look at it
But then the fuse just blew
The meter crashed and power all failed
And sparks spat out and flew

The lights switched off; the cooker stopped
The fridge got rather hot
And all because I didn’t call
Because I had forgot!

And it’s the same thing with your pulse
The beat within your heart
As leccy current fires this beat
Save needing a kick start!

So take a simple test to know
Your pulse beyond all doubt
For if it goes awry at all
You can get it checked out

“Leccy” is a colloquialism for Electric 

Corazón Neón

Corazón Neón (Photo credit: OssprO)

 

 

 

 

 

 

 

 

 

This week is Heart Rhythm Week which celebrates Ten Years of Innovation and Advancements in Arrhythmia Patient Care. Your support will make a difference in helping to protect the many millions of arrhythmia patients worldwide.  Together we can:

  • Work to save 100,000 lives from sudden cardiac arrest (SCA)
  • Improve outcomes for 1 million AF patients
  • Increase early detection and management for 2 million arrhythmia sufferers

Please click here to find out more.

Sonnet To A Heart Beat (Know Your Pulse)

A heart beat pumping though life every day
A rhythm finely honed to tick on by
A pulse that taps and never goes away
A cadence of existence to imply
A measure that keeps tempo and keeps time
A timpani in life that we all know
A stroke that paces like a structured rhyme
An undulating meter fit to go
Yet palpitate or syncopate the beat
Or feel it quiver anachronically
When pulse jiggers and jumps out of repeat
Go get a check-up with your own GP
For know your pulse and maybe stave off strife
Rhythmically aware to save your life

This week is Heart Rhythm Week which celebrates Ten Years of Innovation and Advancements in Arrhythmia Patient Care. Your support will make a difference in helping to protect the many millions of arrhythmia patients worldwide.  Together we can:

  • Work to save 100,000 lives from sudden cardiac arrest (SCA)
  • Improve outcomes for 1 million AF patients
  • Increase early detection and management for 2 million arrhythmia sufferers

Please click here to find out more.  

Know Your Pulse